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The following
article was written by Valerie Halliwell Smith. Smith is the
Director of Developmental Education and the Learning Support
and Testing Center; she received an Educational Specialist degree
in School Psychology at La Sierra University in June of 2001.
THE EFFECTS
OF ATTENTION DEFICIT HYPERACTIVITY DISORDER
ON ADULT
DEVELOPMENT
Introduction
Deep inside my core was a little person saying, "It does not make sense,
you are not stupid, there must be something." Two years ago I found
myself facing a life of emptiness, unresolved conflicts, and a feeling
that I had only one shot at life and I sort of blew away half of it.
If I wanted to salvage any part of it, I had better do so in
a hurry.
I found myself in therapy, and I finally got the nerve to call
the local community college and ask to be tested for learning disabilities.
Guess what I found out? I had learning problems with a wide range
of differences in levels of achievement! I finally had a piece of
paper that said I was not brain-dead, or lazy, or stupid, and no, it was
not in my psyche trying to do myself in! I had a piece of paper in
my hand that said you have subtle learning disabilities as well as ADD/AHDH (Stolowitz,
1995, p. 5)!
One suspects
that these poignant, painful words of self- revelation spoken
by Margaret Stolowitz (1995) might be typical of a late-blooming
young adult.
Instead it is revealed that Margaret, a 50-year-old who has worked
for many years as an LPN, is now attending Hampshire College
in Amherst, Massachusetts, as a full-time, very nontraditional
student with subtle learning disabilities as well as ADD (Attention
Deficit Disorder) and hopes to become an advocate for other students like
herself.
Background
Or when learning of her middle age, one might surmise that she
is merely typically reflecting any of the leading human
development theories outlined in Papalia and Olds (1998). Jung would suggest that she
expresses characteristics previously suppressed when she says, "Because
of this quest for self-identity and personal satisfaction, I have grown
in many ways. It had not been easy and remains a hard path to follow"
(Stolowitz, 1995, p. 4). Erickson proposes that 50-year-olds
like Margaret wish to mentor younger people when she writes, "I wish to
reach those people that feel deep inside of them is a person waiting to
evolve into a beautiful self-assured intelligent being" (Stolowitz, 1995,
p. 4). Peck would suggest that Margaret is shifting emotional investments
to others when we hear these words from her: "I would like to reach
those adults who felt that they could have done more with their lives,
yet remain frustrated by limitations that are not understood, and bad memories
of their learning experiences" (Stolowitz, 1995, p. 4).
Vaillant asserts that much of the pain comes from having the
maturity to face pain that was suppressed for years, as reflected
in these words from Margaret: "My school life was awful from the
beginning to the bitter end. I did not read until the sixth grade" (Stolowitz,
1995, p. 4). Or Levinson proposes that middle adultsâ (age
45-50) reappraisals lead them to a new life structure involving new choices,
as we saw reflected in Margaretâs wrenching words at the beginning
of this paper.
While
it is true that she does appear to reflect these differently described middle-age
characteristics, it is also true that her story, when read from beginning
to end, differs from the norm in severity, intensity, and duration. The
kinds of issues that Margaret confronts at age 50 are different from the
norm, as evidenced in remarks such as, "Only recently did I learn that the
flat side (of a puzzle) was an outside piece of a puzzle," and, "Even
now I know what sounds correct but not why, so most of what I write I need
to read out loud to myself to hear if it sounds correct" (Stolowitz,
1995, p. 4). And finally, I cannot express strongly enough the feeling
of having found another voice. I hurt very much when I think of all the
good thoughts and ideas, as well as the creativity, that had been locked
in my brain for so many years, trapped, unable to be expressed (p.
5).
Her experience
prompts one to find out if and how other ADD adults have had their development
affected.
Proposal:
Scope and Definitions
This research paper will explore in a limited capacity the effects of
Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder
(ADHD) on adult development. (ADHD was first referred to in the literature as
ADD and is still used interchangeably by the media.)
References to learning disabilities research in general will
be included due to the comorbidity of the two disorders. Additionally,
due to the amazingly small amount of research done on adults and the rather
vast amount on children, the author has chosen to interject excerpts from
Margaret Stolowitzâ personal narrative and will refer to it intermittently
throughout this paper. Her intensely emotional experience seems to
typify the norm for adults with ADD/ADHD.
ADHD,
a neurobiologically based disorder, is characterized by a symptomatic triad
of inattention, impulsivity, and hyperactivity (American Psychiatric Association,
1994). Only recently has a set of criteria been established that applies
to adults. According to the DSM-IV, (1994) adults must experience
these specified symptoms for at least six months to a degree that is maladaptive
and inconsistent with their developmental level.
Also, there must be evidence of some hyperactive-impulsive or
inattentive symptoms that were significant enough to have caused impairment
before age seven. In addition, an adult diagnosed with ADHD must have
impairment over two or more settings (i.e., school, work, and at home), and
there must be clear evidence of clinically significant impairment in social,
academic, and occupational functioning. Finally, the symptoms cannot
be accounted for by another mental disorder. Only recently are researchers
beginning to give up the belief that ADHD ceases with maturation.
Jackson and Farrugia (1997) indicate that "recent longitudinal studies,
however, have provided ample evidence that ADHD may be a chronically disabling
condition, and researchers have unanimously reported findings of continued
and augmented impairment as children diagnosed with ADHD age into adulthood"
(p. 312).
Research
History and Statistics
In the past few years, the field of learning disabilities has begun to
direct more of its attention to adults as increasing numbers of students exit
mandated school-age programs. Upon leaving school, students become adults
with the learning disabilities, entering a stage of their lives that necessitates
not only new accommodations and services, but also, and more importantly, new
ways of thinking about their disability.
Jackson and Farrugia (1997) estimate that between 30% and 50%
of children diagnosed with ADHD will continue to exhibit disruptive symptoms
throughout their adult lives. However, despite the demographic
shift cited by Gerber (1994), there has been comparatively little research
and writing about adults. This trend is even more amazing since adulthood
is unique compared to other stages of human development because of
its age range upward to 60 years, based on U.S. longevity estimates.
By contrast, school-age years typically span twelve or thirteen
years, and research often is further broken into childhood versus
adolescence or an elementary- versus secondary-school dichotomy.
Even
though the bulk of the research focuses on children, Newsweekâs
recent (January, 1998) "Special Report" on the brain claims that "the fastest-growing
category of disability is Îlearning disability,â especially
the variants of attention-deficit disorder" (p. 56). Even as long
ago as 1975, Wender noted that "problems characterized as attention disorders
and hyperactivity have long constituted the most chronic childhood disorders
and the largest sources of referral to child mental health centers"
(p. 45). Craig (1996) suggests adults with ADD and ADHD are a new phenomenon
to many health care providers and suggests that many children with these
classifications have persistent problems into adulthood.
Craig confesses, however, that the significance and management
of these disorders for adults are poorly understood in the medical
world.
Even
though there is a growing awareness of the "aging" ADD population, the majority
of articles continue to focus on children. Last July,
for example, American Family Physician (1997) featured an article titled "ADHD: The
Role of the Family Physician." While the title implies a look at the
disorder for the whole family, the editorial begins with the familiar
statistic that "50 to 60 percent of cases continue into adolescence and at
least 30 percent continue into adulthood" (p. 42). But then the article
only addresses children. In spite of this narrower focus in the research
literature, the number of students with learning disabilities entering postsecondary
institutions has grown faster than any other classification (American Council
on Education, 1992).
In fact, according to Jarrow (1987), executive director of the
Association of Higher Education & Disability (AHEAD), students
with learning disabilities are the "single largest contingent of students
with disabilities being served on American campuses" (p. 46).
Characteristics
and Effects of ADHD
Jackson and Farrugia (1997) give the most concise and
thorough explanations of primary and secondary adult
ADHD characteristics of the articles this author reviewed. The three primary characteristics mentioned earlier
(inattention, overactivity, and impulsivity) are frequently expressed differently
by adults. One can more easily detect these symptoms in a child than
in an adult, for children continually have teachers and parents watching
over them. To recognize ADHD symptoms in adults, counselors must know
what to look for and where to look.
Note that
by definition ADHD explicitly incorporates "clinically significant
impairment over two or more settings." Gerber et al.(1990) assert
that persisting problems in adulthood tend to become worse or are exacerbated
as the years unfold. Let us explore how the three primary characteristics
might typically affect adult development.
Effects
of Inattention
For ADHD adults, the inattention factor can bring on
a cascade of difficulties in life (Nadeau, 1995). For example, when these adults
inconsistently sustain attention on a job, they may have difficulties retaining
employment (Weiss & Hechtman, 1993). Inattention to rules and regulations
may habitually get them into trouble with the law because they "forgot"
about the notice that came in the mail to have their car inspected
and then "misplaced" the ticket they received for not having it done.
The adult may develop and continue negative attitudes because
they perceive that nobody understands how difficult it is for
them to work steadily, become organized, keep friends, and set
goals for themselves. (Gittelman et al., 1985).
Jackson and
Farrugia (1997) cite several studies (Mannuzza et al., 1993;
Weiss
& Hechtman, 1993; Nadeau, 1995), suggesting somewhat more optimistic
outcomes that ADHD adults generally become economically self-sufficient but
may have a poorer work record than their normal counterparts.
They change jobs and are laid off more often and have lower occupational
aspirations, and employers rate them as inferior to other workers.
However, they rarely fail because of incompetence or poor ability.
In fact, most have great strengths and high potential if they
find the right job. Many do best at jobs that do not require close
supervision, have duties that vary and change often, and incorporate stimulating
opportunities that interest them. Margaret speaks of her own strengths
in these words: "One of my strongest points is that I can take any
idea, no matter how unrelated it may seem to others, and find a way to have
it support my own÷I find connecting threads to pull ideas together
so that they become similar" (Stolowitz, 1995, p. 6).
Effects
of Impulsivity
Adults with impulsivity commonly will have difficulties with delayed gratification (Barkley,
1990). Interrupting conversations of others, wanting things immediately, not
thinking about behavioral consequences creates difficulties with having strong
social relationships. They tend to disregard othersâ feelings, thoughts,
and actions. They may seek the thrills of dangerous activities (Carlton & Manowitz,
1994). Their often impaired judgment and poor decision-making abilities
lead to less stable lives (Jackson and Farrugia, 1997). Their decreased
impulse control, restlessness, and decreased concern for consequences leads
them to frequently acting out aggressively (Hechtman & Weiss, 1983).
Research regarding
ADHD adults and criminality reveals conflicting reports or
prevalence.
Some have found that criminal behaviors were not significantly
greater (Hechtman & Weiss, 1983), whereas others have reported that 5%
to 25% of adult ADHD participants are incarcerated (Mannuzza et al., 1993).
A recent FBI Law Enforcement Bulletin (1997) cites studies (Barkley
et al., 1992) suggesting that this group of adults is likely to cause and
experience more auto accidents, sustain more bodily injuries associated with
accidents, and receive traffic citations, particularly for speeding.
The Bulletin, however, adds that ADHD adults are not "criminals waiting to
happen" (p. 15). The best causal connection between the two appears
to be the development of antisocial problems in adolescence.
To date, research has yielded very limited hard data on the relationship
between ADHD and criminality.
Effects
of Overactivity
Wender (1987) describes ADHD adults as "often Îon the go,â seem
to never Îrun out of fuel,â and are consistently trying out new
hobbies and exploring new areas of interest" (p. 60). They are unable
to concentrate because of nervousness, anxiousness, and restlessness.
They may be seen fidgeting, moving in their seat frequently,
bobbing legs, and tapping pencils. Pent-up and sometimes violent energy
can lead to frustration, anger, and explosive personalities. Their
overactivity becomes more noticeable when required to sit for
a sustained period of time.
Margaret (Stolowitz,
1995) writes: "I remember trying to hold my body together long enough
not to get into trouble, not to break something, not to touch what
I shouldnât, and not to say things that were wrong÷an awful
chore" (p. 5)!
Secondary
Characteristics
One
can imagine how the impact of accumulated failures might lead
to a constellation of difficulties associated with an unfolding
adult life. Jackson and
Farrugia (1997) cite studies (Javorsky & Gussin, 1994; Leimkuhler, 1995)
pointing to low self-concept as a common secondary characteristics of adults
with ADHD because many have problematic educational experiences and more
personal problems that lead to feelings of incompetence, insecurity, and
ineffectiveness. Nadeau (1995) commented that many are plagued
with a chronic inner sense of underachievement and intense frustration.
Many have repeatedly heard negative messages about themselves,
both directly and indirectly from teachers, parents, spouses, friends, and/or
employers who highlight their shortcomings. Margaret speaks of her
frustrations with these words: "I know when I have forgotten to take
the Ritalin÷the frustrations come out of no place with the power
of a furious wind, I am again at the control of my moods, unable to control
my responses to them, and sometimes they take me on terrible roller-coaster
rides" (Stolowitz, 1995, p. 6). One can only imagine how these
uncertainties and self-doubts could leave unsettling effects on the psyche
of the "mature adult" who is groping to lead a "normal life."
Where Do
We Go From Here?
Margaret Stolowitz (1995) concludes her article by saying, "Words are cheap÷action
is what counts" (p. 6)! It would seem that any ADHD research is
needed as our understanding of it and its effects on adults is
so paltry and undocumented that virtually any studies would be
welcome.
It is generally accepted that learning disabilities and ADHD can be lifelong
problems that accompany each other. Many mental health professionals assessing
adults have difficulties deciphering which disability came first. Was
the initial problem the learning disability that caused the child to behave
poorly, or did the ADHD combination of inattention, overactivity, and impulsivity
disable children throughout their educational experiences, which then effect
long-range problems into adult development (Jackson & Farrugia, 1997)? Further
research to document the overlap of these two disorders might help answer the "chicken
or the egg" issue.
Gerber
(1994) points out that current research and writing in the field of learning
disabilities has not broken from a mind-set of studying it during the school-age
years, when development is reactively rapid and temporally compact. He
urges the use of research on adults with meaningful developmental markers. Cronin,
Patton, and Polloway ( as cited in Gerber, 1994, p. 7) suggest research
and writings be presented in adult contexts that group major life demands
into six arbitrary domains:
employment-education, home and family, leisure pursuits, community
involvement, emotional and physical health, and personal responsibility and
relationships.
Results in these areas might assist one with more prescriptive
coping strategies, particularly as a preventive measure.
The author
of this paper drew on such limited research that it is not
fair to generalize from these findings alone. However, Gerber (1994) wrote a comprehensive
article on research articles of adults with learning disabilities found
in the Journal of Learning Disabilities over the last ten years.
He noted that the majority of studies were on college-age students.
Therefore the age ranges dealt primarily with the younger adult,
ages 20-30. Even the high school follow-up studies focus on adults
in their early twenties; rarely do studies involve adults older than
40. Since it takes time for an adult to be identified as "successful,"
one must include older adults when studying "successful adults," and this
rarely happens. Adults need to be chosen or delimited consistent with
the age-span phases described by the theorists on adult development.
In most cases, then, it seems that access and access alone to
adult subjects of whatever age determines the age range of subjects
to be studied.
There seemed
to be little effort÷if any÷to cluster subjects in accordance
with conceptualizations of adult development.We do not have the luxury of
time for this long and complex stage of development. As the field
moves forward in its thinking about adults with learning disabilities, the
research that is generated must take on an integrated life-span approach,
so that what we learn will be meaningful to the profession and specific
to the populations we serve (p. 8). A greater effort should be made
to tap a broader, more appropriate adult population for research
studies.
Conclusion
This author hopes that ADHD research focusing on adult developmental stages
will forge ahead with vigor. It appears that ADHD adults have for too
long had to defend their misunderstood personalities and psyches. Their
own lack of knowledge about how this neurobiologically based disorder has shaped
them holds for many their self-concept in bondage. They need empowerment! They
need coping strategies. New research that aids their self-understanding
will empower!
How
does ADHD affect adult development? Listen one last time to Margaretâs
assertion: "There will be a time in the future when I will challenge
the academic system, because it is very destructive to those people who
do not fit into little premade boxes, much to the discomfort of the established
and outdated system" (Stolowitz, 1995, p. 6). Research must make a
difference·not just for the Margarets but also for society at large,
which can play a supporting role in hindering or enhancing adult development
over the life span.
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